Reflex Sympathetic Dystrophy Syndrome
Complex Regional Pain Syndrome
An RSD(S)-CRPS Advisory Introduction
RSD(s)-CRPS Advisory is an information, guidance, support, resource and research
friendly adviser relating to RSD(S)/CRPS, Reflex Sympathetic Dystrophy Syndrome,
known also as, Complex Regional Pain Syndrome. Having been diagnosed myself in
2003, having a permanent Spinal Cord Stimulator (SCS) implanted in 2006, having had
several Lumbar Sympathetic Nerve Blocks and having graduated from the Compass Center
for Functional Restoration on July 17, 2009 in Sacramento California it continues to be
my passion to promote awareness and offer support to others like me, to their families
and friends so that they too might learn about this painful and complex, often
progressive and debilitating neurological pain disorder which affects the sympathetic
nervous system commonly known as the "fight or flight".
A support system is necessary to achieve the best possible future for both the patient,
survivor and their families.
Fighting the Fire, finding the cure (Overview)
Through continuous research we strive to bring you the most recent clinical trials,
medication reviews, workers' compensation law, injured workers updates, pain
policy, legislative action, related healthcare concerns, non profit information, peer
sites, blogs, media and networking options so that you have the resources that you
need as we search for the cure.
We want to hear from you! (A Little About What We Do)
We're an information resource. We want to offer you an opportunity to share what
you do. From the chronic pain that might alter your life to your hope, your spirit and
|We have all been united by a single
common denominator and that is... Pain"
|© 2005-2016 Twinkle VanFleet- Founder, administration and management. Kurtis VanFleet- Assistant Admin.
CRPSAdvisory.com, RSDAdvisory.com- Where Chronic Pain and Depression Collide
All rights reserved on all personal content, including but not limited to, graphics, essays, articles, poetry, lists,
compilations, photos,, quotes and other intellectual or creative property.
May be used by permission and clear credit to source.
All other content published on this site remains the property of the copyright holder.
We take no credit for use or content of third party permission's, but are grateful to be allowed to share for education
This image was created by my then 14 year old son Kurtis. I love you, Kurtis Ozra!
"I will walk, when I cannot
walk, I will carry myself, when
I cannot carry myself..
I will fly!"
Written while attending Compass Center for
Functional Restoration. © 2009
If you would like to link to
us by graphic, please use
the image above. Resize as
Free websites and web tools below.
Help spread RSD/CRPS awareness
or tell your story without the cost of
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can also have a site of your own.
Not everyone can afford the costs
involved in maintaining one. I can
barely afford this one. Don't be
|The RSD(S)-CRPS Advisory Info & Support Group
We're a diverse family oriented group of RSD/CRPS and Chronic Pain Survivor's. We invite patients,
caregivers, family and friends of to join us in supporting one another. We try to use humor as a
diversion to pain and depression. We hope to learn from you as much as we hope you learn from us.
The International Pain Foundation (Your Power of Pain Headquarters) provides
community based support services that address the immediate need of chronic pain
patients with Neuropathy conditions such as RSD/CRPS, Post Cancer Pain,
Diabetic Neuropathy and many more. Accordingly, beneficiaries include patients
who are economically and socially affected by these invisible diseases. Whether
you have Neuropathy pain, or are a caregiver, family member or friend of someone
diagnosed, we’ll help you face the challenges and life changes of chronic nerve
pain, head on. PowerofPain.org
|"Just one more step Mama, just one more step"
©2002 Ozra his little voice proudly encouraged"
~And she did.
We Fight Together!
© 2003-2016 Kurtis Ozie (Ozra) VanFleet
(Spoken by my then 5 year old son to me. I carried
those words online and they've been quoted ever since.
I’M LEARNING ABOUT
CHRONIC PAIN THERAPIES
If you've tried other treatments but are still suffering from chronic pain, you
may be relieved to hear about other options: Medtronic Chronic Pain Therapies.
Medtronic offers two types of FDA-approved therapies for chronic pain: spinal
cord stimulation and targeted drug delivery. If you have been in pain for more
than 6 months and your current treatment has not provided adequate back pain
relief or chronic pain relief, Medtronic Chronic Pain Therapies may be the right
choice for you.
For Healthcare Professionals
TALK TO A MEDTRONIC PAIN THERAPY AMBASSADOR
Wondering what it’s like to receive spinal cord stimulation or targeted drug delivery?
Talk with a Medtronic Pain Therapy Ambassador! An ambassador is someone who is living
with one of our chronic pain therapies and has volunteered to share his or her experience.
If you are considering neurostimulation therapy or targeted drug delivery, the Medtronic
Chronic Pain Therapy Ambassador Program gives you the opportunity to talk on the phone
with someone who is living with the therapy. These patient ambassadors want to share their
experience with you and answer your questions. Because they have lived with chronic pain
and are now receiving a Medtronic Chronic Pain Therapy, ambassadors offer insight that can
be very helpful.
When you talk with your ambassador, you might ask questions like:
When did you begin receiving pain therapy?
What did you experience during the screening test?
How has pain therapy changed your life?
When you sign up to talk to an ambassador, you'll be able to view profiles of all of our
ambassadors, choose the ambassador you want to talk to, and schedule a time that is
convenient for you to talk.
Medtronic cares about helping you move forward in your pain journey and is offering this
program at no cost.
Speak to a Nurse
TALK TO A MEDTRONIC PAIN THERAPY AMBASSADOR
TALK TO A MEDTRONIC PATIENT AMBASSADOR
Sign up to talk to a Medtronic Patient Ambassador